Our every other week trips to Duke are now complete! Our son hit his maintenance dose on Monday, February 27, so now he won't go back until June! Now we settle into the structure of eating the same dose every week. It is amazing to look at the size of the dose now and compare it to where we started. We started with a tiny dose and now it is probably a tablespoon full or more. If he is on the high dose, that would be 10 peanuts!
In other news, they have started the food challenges for some of the kids in our trial. Three kids saw their IgE drop below 2 and they have been on maintenance for over a year, so they were ready to challenge. The first 3 started in January and all passed the first challenge, which is typical since you have been on the dose there is no reason you wouldn't handle it. Then they have to go a whole month with no dose, no exposure....then they come back for a second challenge. This is the one that counts and shows true clinical "tolerance". All 3 of the kids passed the second challenge with no issues and were able to eat a tablespoon of peanut butter at the end of the day!! Awesome!!
So, our son had his blood drawn again and we will learn the results of that next month. I am anxious to see if his IgE has dropped any further. I was so happy that it dropped to 6 from 16 during the fall. I am hoping to see another point or two shaved off of there! Our goal is under 2, so the closer we get the better.
The AAAAI conference is in Orlando this weekend and they are covering the results from the first trials...interesting stuff. They have learned so much already....still a long way to go, but each day brings new discoveries.
I will check back in again in June after our next appointment. Also in June, we go back to the eye doctor for his 1 year follow-up to his surgery. He is not tilting hardly at all any more and his eyes look great! Yay!
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