Tuesday, August 9, 2011

3 months already!

Wow...we just got back from our biweekly trip and I can't believe it has been 3 months already!  We started on May 9 and here it is August 9 already!  My son is doing great with his doses and luckily, he has been able to take all of them and we haven't had to miss any.  Typically, you only miss a dose is the child has a fever or a significant illness.  I am hoping that we can avoid all of that as much as we can! 
At our last visit, we had a chance to meet some other families and that is always fun.  I love to hear about their experiences and how their kids are doing.  One little boy that is in the same study as us is on his maintenance dose and his numbers have dropped below 2 already...so he will likely be food challenging this fall!  That is so awesome and so encouraging!  She also said that he hadn't had any reactions with any of his doses throughout the whole program...so, that is what we are aiming for!  :)  We also met another boy who is older and is in a different trial, but still on oral immunotherapy for peanut.  He has been on the maintenance dose for probably 6 months or so and then out of the blue, he had a reaction.  Well, not out of the blue actually....he has asthma and it seems that asthma kids seem to have more issues with the treatment (although that is just my own observation, not scientific).  Anyway, he has asthma and then on top of that he had his dose and then went on to participate in a particularly intense athletic class which was soon after his dose.  We are supposed to not have them participate in anything strenuous after a dose.  So, at the end of his class, he started having asthma symptoms and that is what they thought it was, then hives showed up...not asthma...peanut!  So, that was a gentle reminder to us all that we have to follow the protocol and not ever take for granted even if they have been great with no issues!  However, this kid is still doing great and his IgE has dropped significantly since he started...so his dad said that this was merely a blip and that they were going to keep on keeping on! 

So, we are still doing great and they are still seeing great results for kids in both the OIT and SLIT trials!  We still feel very blessed to participate and every other parent I talk to has said the same. 

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